Doctors said Rhett Lamb of St. Petersburg apparently has a condition called chiari malformation that puts pressure on his brain.
Rhett has never taken a nap or gone to sleep at night, forcing his parents to keep watch day and night.
"(My husband) has the day shift and I kind of have the afternoon shift," mother Shannon Lamb said. "We share the night shift because no one can sleep in the house when he is up anyway."
Lamb said she is working extra to pay for Rhett's large medical bills. She also said her husband, David, has given up his job to care for their child.
"I would give anything for Rhett to be this normal little boy who plays and has a good time," Lamb said. "If it takes going to every single solitary doctor, I will do it."
According to the May Clinic, chiari malformation is a rare abnormality where brain tissue protrudes in the spinal canal.
Part of the skull is abnormally small and puts pressure on the brain.
Rhett checked into a hospital for an experimental surgery Thursday.
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