2nd Episode of Fainting w/Convulsions/Siezure (my daughter)

Ok....so my middle daughter Cassi (10 years old) had her 2nd episode of fainting and went into cunvulsion/siezure. First, no it wasn't Kaitlyne and her new meds (she doesn't even take the meds in the summer).

The 1st episode happened 2 years ago. She past out, fell on me and started into like a siezure like episode. Yep went to hospital....tested and they said it was probably blood sugar or something, cuz everything else came out ok.

Both episodes happened in the morning about 30 mintues after waking and not eating breakfast yet. THIS time, she was sitting down and fell off her chair and it lasted 2-3 minutes this time! It happened with her best friend, her best friend witnessed it and called for her mother and the mother witnessed it too and she works with handicapped and knows what a siezure/cunvulsion looks like. Her friend is very concerned and cried for some time....she keeps having her mother call and ask how she's doing and she wants to be with Cassi all the time now....it's sooooo sweet how much she cares!!!!

We went to the ER and had blood tests, a complete physical and made an appointment with a Nurological Center and had an EEG done Thursday (measures brain activities to check cunvulsion/siezures). That came back fine.

They tell me a cunvulsion/siezure is when the child is out of it for atleast 30 mintues AFTERwards (doesn't know where she is, who she is and so on). But this didnt' happen with Cassi. She got up after the episode, sat up and then complained of a tummy ache (both before and after). She doesn't remember what happened, but she knows it happened. So they are saying it was just a fainting. Well the why the heck did she cunvulse for 2-3 minutes? They say you can cunvulse with fainting.

We have another doctors appointment Monday for a recheck and to see what our next step is. I am asking for a juvenile diabeties glucose testing. I'm concerned about that, because there is history in both sides. Other than that.....and I PRAY TO GOD that it's not juvenile diabeties....I have no clue.

We've looked it over and over, it wasn't that she stood up too fast (she was sitting). Or over exhausted, or heat exhaustion....cuz it was morning and not hot and obviously not active for over exhaution.

She's a very healthy and athletic girl....so it's hard to believe it's puberty or hormones....but it could be. But she's only 68 pounds and 10 years old and NO SIGNS of developing whatsoever. BUT you never know. We have 2 cousins that this happened to right before puberty or during a growth spurt....but I'm not satisfied with that.

I'll keep ya updated and just wanted everyone to know, why I've been away and/or out of it (exhausted, worried, stressed) and not posting here too often lately. Man.....2 days in the hospital (appointments that last forever or are 2 hours away driving to....not fun. NOt that I'm looking for fun....but come on and tell me doctors what it was.

Heck we probably won't even know....but I'm not stopping until I'm satisfied with an answer....with the exception of putting my daughter through too much (unless necessary).

Wow, I'm sorry to hear about that!! Always follow your intuition. Doctors always say, "It's nothing" when they can't find any reasons for it...when you know it IS something. My thoughts and prayers are with you!

BTW...a friends teenage daughter was just diagnosed as having a prolapsed heart valve (she would faint...but not sure about convulse). Something about being in a certain position that would put stress on the body/heart and cause her to faint...gosh, I'm not too sure what it entails...but it's another place to look.

Again, lots of luck and please keep us updated!

I've been wondering where you've been, and now I know... I'm very sorry this has happened sweetie! Is it at all possible that it could be epilepsy? I have a friend who would black out and convulse for a few moments, and then everything would be okay. No clue as to what happened... Just minutes she lost and doesn't remember. I hope everything is okay with Cassi and that the physicians can ensure there is nothing wrong, and if there is, I hope they do their best to make her better ASAP!!! We're here for you sweetie! Know that! Please definitely keep us informed! The best of luck to you and yours, and I'll keep Cassi in my prayers! *Hugs & smooches*

Originally Posted by VenusGoddess Wow, I'm sorry to hear about that!! Always follow your intuition. Doctors always say, "It's nothing" when they can't find any reasons for it...when you know it IS something. My thoughts and prayers are with you!
BTW...a friends teenage daughter was just diagnosed as having a prolapsed heart valve (she would faint...but not sure about convulse). Something about being in a certain position that would put stress on the body/heart and cause her to faint...gosh, I'm not too sure what it entails...but it's another place to look.

Again, lots of luck and please keep us updated!

I know what you mean about the doctors and them not knowing the reason....so they give an excuse....like it must have been a fluke. This can happen sometimes and we may never know....well DANG IT, it's not normal...right?
Thank you! My mom's an EMT and she said the same thing....not that it is, but about the heart thing too. So I'm sure that's and avenue we'll be exploring.

TO EVERYONE....please know, I'm kinda out of it....so if I sound cold or confused or 'not personal' it's in no way meant to be mean. I am trying my hardest to respond to my fellow MuTer's and all my dear friends here. THANK YOU TO EVERYONE!!!! You don't know how much you all mean to me!

Originally Posted by Aquilah I've been wondering where you've been, and now I know... I'm very sorry this has happened sweetie! Is it at all possible that it could be epilepsy? I have a friend who would black out and convulse for a few moments, and then everything would be okay. No clue as to what happened... Just minutes she lost and doesn't remember. I hope everything is okay with Cassi and that the physicians can ensure there is nothing wrong, and if there is, I hope they do their best to make her better ASAP!!! We're here for you sweetie! Know that! Please definitely keep us informed! The best of luck to you and yours, and I'll keep Cassi in my prayers! *Hugs & smooches* Thank you much for your thoughts and prayers as well! We have thought about alot of avenues and epilepsy was one of them. I'm not sure if the doctor wants to look at that one or not....but I'll ask as well. Not even sure what that testing details?
I will keep everyone informed and updated if we learn anything new.

Testing would probably be a CAT Scan or MRI. I'm not sure exactly, but I figured it was a thought. I remember watching my friend have an episode/seizure, and it happened just as Cassi's did. She knew it was coming on for once though, and had her daughter run in the house to get her meds. Cyera's godfather has epilepsy too, but his has been controlled since he was almost a baby by meds (he now gets BAD headaches instead, but he also has Gran(d) Mal seizures).

FYI, you don't sound cold or impersonal. Even if you did, we all realize you're stressed and worried, so no offense would be taken Totally understandable in your situation babes! We're here for you, and no worries about "how you come across!" Promises!

OMGosh Kelly! How scary! I really hope things turn out ok with Cassi and I'll keep you all in my thoughts.

What a scary situation. I hope you guys find out what it is soon. You don't sound cold or anything! We realize you are stressed. I will pray for you guys!

Just checking on you woman......Wassup?

How's Cassi doing?

i'm so sorry for you. i hope she's doing better.

Ok...so here's an update (had a the re-check today). She is scheduled to see a Pediatric Nurologist now (next Tuesday, July 27th). She had an accident this weekend (wet the bed) which is NOT like her (in other words, she could have had a seizure in her sleep…could have…we don’t know for sure). They told us a grand mal seizure is when you wet your pants. So……..and of course the doctor mentions other testings to make sure it's not a tumor or blood clot or all that stuff. Now I suppose I should study up epilepsy too....

HOnestly, right now it just hit me and I'm soooooo flippin' worried! I was doing really well for a while and now just all of the sudden.....I'm scared. I hate this and dang think I need some valum or whatever that stuff is....heck I don't even know what it does. I'll get over it. Just need a good cry. Guys don't understand why a person would get worried and upset, when we don't even know what it is yet.... Well ummmm because I'm a Mom. Yes I was worred before, but I hid it and now it just hit me and I showed it.

I mean look at the long term....will she ever be able to drive? Man! I know I need to just stop and knock it off....

Anyhow....thank you everyone for your kind words and I'll keep you posted.

Yep a little bit of stress and another appointment, and I’m sure this won’t be the last.

I'm very sorry you're going through this Kelly, but you're not alone! We're most definitely here for you! No matter what! I wish you the very best, and I hope Cassi's well soon! I'm keeping you in my prayers!

I'm soo sorry to hear this, Kelly! You and yours will be in my thoughts and prayers!

I hope it's nothing major....thinking about you all!!

perhaps it was something like "respiratory alkalosis" it's a form of hyperventilation....it happened to my daughter...she wasn't actually hyperventilating or in a situation where she was freaking or anything like that.....she was a bit worried.....anyway, you kinda pass out, have a seizure like episode, your hands,arms & legs go stiff and turn kinda blue .....it's too much oxygen and not enough carbon dioxide in the system, b/c of breathing funny....but like I said my daughter was not breathing really heavy at the time.........I just thought maybe your daughter was worried about something or missed you or who knows what, it's brought on by many different things,not just stress or whatever..........anyway just an idea.

hang in there Kel! We're all praying for you.

For Real, girlfriend. One Day at a time. Don't worry about her driving and stuff...you'll just go mad and it helps no one, especially, well, you and her.

If things get too panicky for you (panic attack time /combined with /crying jags) see if your doc or her doc or someone can prescribe you some Ativan. It is an anti-anxiety med that doesn't stone you out as bad as Valium and some of the other stuff.

I'm sorry this is happening...Have hope. After all, there are only solutions form this point on.

so sorry to hear about this, Kelly. I understand how scary these things are. my ex hostmom´s niece has seizures too or maybe still has them. the doctors couldn´t find a reason for them as far as I know, they said it might go away after puberty (that type is called Rolandi-epilepsy)

it sucks to still be in the dark, but hopefully you´ll know more with each test your daughter has to do.

as far as I know a Grand Mal seizure causes people to be blacked out for a while after the seizure, which you said didn´t happen with Cassi. and yes they do unvoluntarily urinate during the seizure. I don´t know much about these things so I am no help, just wanted to let you know I hope you find out soon what caused this.

I´ll keep you and Cassi in my thoughts!!!!

Definitely will keep you all in my thoughts...and I'm sending positive energy your way.

I know it's hard to say, but just take a deep breath and relax. Everything seems like a big deal right now, but don't even worry about one day at a time...just take it one moment at a time...and if you need to cry, do it!

I'm sure everything will be fine. Think positive!!

Lots and lots and lots of hugs (and tissues)!

--Angel

Hi...i just wanted to say that i hope that your Daughter will be OK and that the Dr's will find out what is causing the fits/convulsion's. I thought it was epliepsy when i was reading your post but only the Dr's can say for sure.

I hope she makes a very speedy recovery and you yourself are ok also.I will check back and see any updates.Best wishes for your Daughter.

Ok...so busy over here...here's our update.....

Cassi had her appointment today with a Pediatric Nurologist. Here’s what he is 99% sure she has: Situational Syncope (fancy wording for ‘fainting’ with siezure related activities).

BUT here's the killer.....her’s is the Hair-grooming Syncope. How funny is that….not funny, but imagine the little teasing we’ve already come up with…”well guess we got to shave your head is all”……(kidding of course).

So we have a couple more tests to rule out the worst case senerio's...but the Specialist is pretty certain that she's got the above (Situational Syncope).

She will have a Sleep Deprived EEG (yep another but this time sleep deprived) a EKG and an MRI oh and then a fasting blood test. Then when those come back fine….the doctor is 99% sure it’s the Situational Syncope like he believes it is. But to ease everyone’s mind, and his own….he wants to run the tests to rule out the others.

AND yes….both episodes happened after or whiling doing Cassi’s hair. 2 years ago, I was fixing cassi’s hair when she fainted. He said, she will grow out of it…BUT this most likely will NOT be the last episode before she grows out of it.

So…….that’s our update.

I'm glad that your getting some answers. It sounds like you've got a good Doc that wants to make sure he's covered all of the basis. Good luck!