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Ok, well that's a bit too far but . . . I think I have found the source of the bulk of my health issues.
I have been sick for about the past 5 years. I was diagnosed with systematicc lupus almost 3 years ago. I have had terrible joint pain, I get sick very, very easily, I have hemoglobin issues, extreme photosensitivity, major migraines, unspecified abdominal pain, swollen, hard lymph nodes and am exhausted just about most of the time.
I have had 29 or 30 abdominal surgeries in the past 8 years (I've lost count!) My body was ravaged by MRSA on two separate occasions, a couple of years apart. The last bout nearly took my life. It left me barely able to function and took a year to recover from it. I still suffer from the effects of the previous MRSA infections but, I am MRSA-free which is a good thing!
I have been undergoing a battery of tests, CT scans, MRI's, iron infusions, colonoscopy, endoscopy, x-rays, massive amounts of blood work, blood cultures and the list goes on and on. They suspected that I had cancer. I wasn't surprised as we have a long history of maternal cancers, especially among my first cousins (3 out of 17, so far-- and all were/are young- 18, 33, 37; one has died) So, we were trying to figure out a game plan on how we were going to attack it, should the tests reveal that diagnosis. While waiting for those test results, I finally got in to see a rheumatolgist who, once again, took more blood from me (12 viles to be exact). I knew that I had a B12 deficiency-- my kidlets give me my shots for that (they are fascinated with it all so, the 11 yo, 10 yo and 5 yo take turns giving me the shots)
I waited a week or so to get my results from the bloodwork-- everything came back "normal" with the exception of my vitamin D count. It was 9; she wanted it to be between 40-90. When they told me I had low vitamin D, I thought "big deal! That's not my issue!" She then prescribed me an 8-week course of vitamin d, taken once a week. Next Thursday is my last dose of vitamin D.
Not having a clue about vitamin D deficiencies, naturally I went to the internet to find out as much as I could. Wow, was I surprised that many of the problems I was experiencing COULD BE contributed to that deficiency!! In addition, I found out that the Vitamin D deficiency and the symptoms I am experiencing can many times be related to benign tumors on the parathyroid gland (which are easily removed in a 16 minute surgery!)
I was a bit skeptical, still, because, after so many years of being sick and feeling miserable, what's the chances of something like a vitamin d softgel going to make me feel better? I thought about nil.
I hate to "jinx" myself but, I think I was wrong. I seriously think that for the past 5 years, I've been suffering from a vitamin D deficiency. I cannot tell you how much better I feel. Yes, I still hurt and I still have migraines-- my joints kill me, at times BUT I am able to do things-- activities that I couldn't do previously because I was completely wiped out!
While I still must have a follow-up CT scan for my swollen lymph nodes (in mid-July), I am cautiously optimistic that it will not reveal a malignancy.
So, here's to my hero: Vitamin D. I hope it's solved my issues!
Hugs,
Brandi
I have been sick for about the past 5 years. I was diagnosed with systematicc lupus almost 3 years ago. I have had terrible joint pain, I get sick very, very easily, I have hemoglobin issues, extreme photosensitivity, major migraines, unspecified abdominal pain, swollen, hard lymph nodes and am exhausted just about most of the time.
I have had 29 or 30 abdominal surgeries in the past 8 years (I've lost count!) My body was ravaged by MRSA on two separate occasions, a couple of years apart. The last bout nearly took my life. It left me barely able to function and took a year to recover from it. I still suffer from the effects of the previous MRSA infections but, I am MRSA-free which is a good thing!
I have been undergoing a battery of tests, CT scans, MRI's, iron infusions, colonoscopy, endoscopy, x-rays, massive amounts of blood work, blood cultures and the list goes on and on. They suspected that I had cancer. I wasn't surprised as we have a long history of maternal cancers, especially among my first cousins (3 out of 17, so far-- and all were/are young- 18, 33, 37; one has died) So, we were trying to figure out a game plan on how we were going to attack it, should the tests reveal that diagnosis. While waiting for those test results, I finally got in to see a rheumatolgist who, once again, took more blood from me (12 viles to be exact). I knew that I had a B12 deficiency-- my kidlets give me my shots for that (they are fascinated with it all so, the 11 yo, 10 yo and 5 yo take turns giving me the shots)
I waited a week or so to get my results from the bloodwork-- everything came back "normal" with the exception of my vitamin D count. It was 9; she wanted it to be between 40-90. When they told me I had low vitamin D, I thought "big deal! That's not my issue!" She then prescribed me an 8-week course of vitamin d, taken once a week. Next Thursday is my last dose of vitamin D.
Not having a clue about vitamin D deficiencies, naturally I went to the internet to find out as much as I could. Wow, was I surprised that many of the problems I was experiencing COULD BE contributed to that deficiency!! In addition, I found out that the Vitamin D deficiency and the symptoms I am experiencing can many times be related to benign tumors on the parathyroid gland (which are easily removed in a 16 minute surgery!)
I was a bit skeptical, still, because, after so many years of being sick and feeling miserable, what's the chances of something like a vitamin d softgel going to make me feel better? I thought about nil.
I hate to "jinx" myself but, I think I was wrong. I seriously think that for the past 5 years, I've been suffering from a vitamin D deficiency. I cannot tell you how much better I feel. Yes, I still hurt and I still have migraines-- my joints kill me, at times BUT I am able to do things-- activities that I couldn't do previously because I was completely wiped out!
While I still must have a follow-up CT scan for my swollen lymph nodes (in mid-July), I am cautiously optimistic that it will not reveal a malignancy.
So, here's to my hero: Vitamin D. I hope it's solved my issues!
Hugs,
Brandi